Information booklets
LBF is the leading provider of information about blood cancers and conditions in New Zealand. Click on the
booklets below for a downloadable version of each information booklet.
 | Acute Lymphoblastic Leukaemia (ALL) in Adults – a guide for patients, families and whanauDownload booklet (850kb) This booklet is has been written for adults diagnosed with acute lymphoblastic leukaemia (ALL) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Updated December 2011 |
 | Acute Lymphoblastic Leukaemia (ALL) in Children – a guide for parents, families and whanauDownload booklet (800kb) This booklet has been written for the parents and carers of children diagnosed with acute lymphoblastic leukaemia (ALL) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Published December 2011 |
 | Acute Myeloid Leukaemia (AML) – a guide for patients, families and whanauDownload booklet (2.9Mb)This booklet is has been written for people diagnosed with acute myeloid leukaemia (AML) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Updated September 2010 |
 | Chronic Lymphoblastic Leukaemia (CLL) – a guide for patients, families and whanauDownload booklet (2.8Mb)This booklet is has been written for people diagnosed with chronic lymphocytic leukaemia (CLL) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Updated 2007 |
 | Chronic Myeloid Leukaemia (CML) – a guide for patients, families and whanauDownload booklet (3.3Mb)This booklet is has been written for people diagnosed with chronic myeloid leukaemia (CML) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Includes information on newer treatments, including tyrosine-kinase inhibitors. Updated December 2010 |
 | Hodgkin Lymphoma – a guide for patients, families and whanauDownload booklet (3.3Mb)This booklet is has been written for people diagnosed with Hodgkin lymphoma and their family and friends. Hodgkin lymphoma is a specific sub-type of lymphoma with unique characteristics. It provides information about the diagnosis, treatment, and support available for patients and families. Updated June 2009 |
 | Non-Hodgkin Lymphoma – a guide for patients, families and whanauDownload booklet (3.2Mb)This booklet is has been written for people diagnosed non-Hodgkin lymphoma and their family and friends. ‘Non-Hodgkin lymphoma’ refers to all subtypes of lymphoma, except Hodgkin lymphoma. This booklet covers diffuse large B-cell lymphoma and follicular lymphoma, amongst others. It provides information about the diagnosis, treatment, and support available for patients and families. Updated June 2009 |
 | Myeloma – a guide for patients, families and whanauDownload booklet (3.4Mb)This booklet is has been written for people diagnosed with myeloma (also known as multiple myeloma) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Includes information on newer treatments, including Velcade (bortezomib). Also includes information on related conditions MGUS, amyloidosis, plasmacytoma and Waldenstroms macroglobulinaemia. Updated June 2011 |
 | Myelodysplastic Syndromes (MDS) – a guide for patients, families and whanauDownload booklet (2.5Mb)This booklet is has been written for people diagnosed with a myelodysplastic syndrome (MDS) and their family and friends. It provides information about the diagnosis, treatment, and support available for patients and families. Updated April 2010 |
 | Myeloproliferative Disorders – a guide for patients, families and whanauDownload booklet (3.2Mb)This booklet is has been written for people diagnosed with a myeloproliferative disorder and their family and friends. ‘Myeloproliferative disorders’ is a term used to cover a range of conditions. This booklet includes information on polycythemia vera, essential thrombocythaemia, primary myelofibrosis, and other less common conditions. It provides information about the diagnosis, treatment, and support available for patients and families. Published April 2009 |
 | Allogeneic Stem Cell Transplants – a guide for patients, families and whanauDownload booklet (3.6Mb)This booklet has been written for people who are planning to undergo an allogeneic stem cell or bone marrow transplant, and their family and friends. An allogeneic stem cell transplant is a transplant using cells donated by another person, either a family member, or an unrelated donor found using the international bone marrow donor registries. It provides information about the planning, preparation, procedure and after care that a patient and their family goes through when undergoing this type of stem cell transplant. Published September 2008 |
 | Autologous Stem Cell Transplants – a guide for patients, families and whanauDownload booklet (3.2Mb) V1 09/2008This booklet has been written for people who are planning to undergo an autologous stem cell or bone marrow transplant, and their family and friends. An autologous stem cell transplant is a transplant using a patient’s own cells. It provides information about the planning, preparation, procedure and after care that a patient and their family goes through when undergoing this type of stem cell transplant. Published September 2008 |
 | My Guide to Blood Cancer – for adolescents and young adultsDownload Part I of booklet (3.5Mb)Download Part II of booklet (3.4Mb) Download Part III of booklet (3.6Mb) Being told you have a blood cancer at a young age can come as a huge shock. This booklet was written to help describe to young adults what blood cancers are, and speaks to the challenges that they face when encountering a diagnosis of a blood cancer and how to deal with these challenges. Published January 2011 |
 | Dictionary of TermsDownload booklet (3.2Mb)The Dictionary of Terms is designed as a quick-reference tool to help patients, families and friends understand some of the unfamiliar medical and technical words that can be confusing during diagnosis and treatment of a blood cancer or condition. Updated April 2010 |
 | Haematology Patient Diary – a diary for patients, families and whanauDownload booklet (3.5Mb)This diary was produced after requests from patients and families to have a place to keep notes, write down questions and blood results after clinic appointments and meetings with health professionals. With spaces for writing down the contact details for specialist staff, notes from appointments, medication details and appointment times, this booklet is widely used by patients throughout New Zealand. Published October 2009 |
 | Clinical Trials – a guide for patients, families and whanauDownload booklet (2.4Mb)This booklet has been written for people diagnosed with a blood cancer or condition who are thinking about enrolling in a clinical trial. It helps explain different types of trials and answers questions about trial processes. This booklet was created with health professionals working in clinical trials departments in New Zealand to provide information specific to New Zealand patients and their families. Published February 2010 |
Picture books for children
These are two picture books written specifically for children who have been diagnosed with a blood cancer. Joe has Leukaemia & Tom has Lymphoma have been adapted from similar resources in Great Britain and are a first in New Zealand. Although designed for children with blood cancers, they may also be useful for children who have a family member recently diagnosed with acute leukaemia or lymphoma, as they describe the processes of diagnosis and treatment.
 | Joe has LeukaemiaDownload picture book (1.5Mb)Joe has Leukaemia is a picture book, originally created by CLIC Sargent in the United Kingdom. Designed to explain disease, treatment and survivorship information to young children. While this booklet was created for children who have been diagnosed with leukaemia, it is also a helpful tool to explain things to children who have a family member who has been diagnosed. Published February 2010 |
 | Tom has LymphomaDownload picture book (1.1Mb)Tom has Lymphoma is a picture book, originally created by CLIC Sargent in the United Kingdom. Designed to explain disease, treatment and survivorship information to young children. While this booklet was created for children who have been diagnosed with lymphoma, it is also a helpful tool to explain things to children who have a family member who has been diagnosed. Published February 2010 |
Blood Cancers and Conditions – a guide for patients and families
This range of bilingual booklets were created to provide information for patients and their families who speak languages other than English. The booklet has English information on one page and the same content in the translated language on the opposing page. The booklet provides a general overview of the more common blood cancers and conditions, as well as information about treatments for these diseases. More languages are in the pipeline and will be displayed on this page when available. | Chinese (Simplified)Download Part I of booklet (7.1Mb)Download Part II of booklet (6.4Mb) Published May 2010 |
 | Chinese (Traditional)Download Part I of booklet (5.6Mb)Download Part II of booklet (5.0Mb) Published May 2010 |
 | Cook Island MaoriDownload booklet (3.0Mb)Published May 2011 |
 | KoreanDownload Part I of booklet (5.2Mb)Download Part II of booklet (5.1Mb) Published May 2010 |
 | MaoriDownload booklet (3.0Mb)Published May 2011 |
 | NiueanDownload booklet (3.0Mb)Published May 2011 |
 | SamoanDownload booklet (3.0Mb)Published May 2011 |
 | TonganDownload booklet (3.0Mb)Published May 2011 |
All of these resources are available free of charge from all major treatment centres around New Zealand. If you would prefer hard copies of the booklets please contact your local Support Services Coordinator on 0800 15 10 15 or info@leukaemia.org.nz.
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Download Issue 40
April 2011
April 2011
The Leukaemia & Blood Foundation (LBF) is New Zealand's leading resource of information specifically for patients and their families affected by leukaemia, lymphoma, myeloma and related blood conditions.