Affiliations
Lymphoma Coalition
The Leukaemia & Blood Foundation is a member of the Lymphoma Coalition, an international organisation which provides global support to the millions of people living with cancer of the lymphatic system.
The Lymphoma Coalition's purpose is to address existing gaps in awareness of lymphoma and its treatment among patients, their families and caregivers.
There are currently very few patient groups worldwide providing support to people with this form of cancer. In New Zealand this disease kills around 350 people every year. An additional 750 are newly diagnosed annually.
The Lymphoma Coalition is an international not-for-profit network organisation of lymphoma patient groups. Its aim is to build partnerships between lymphoma groups in order to share best practice worldwide and to encourage the formation of new lymphoma patient groups around the world.
To learn more, visit: www.lymphomacoalition.org
Access To Medicines Coalition
The Leukaemia & Blood Foundation belongs to the Access To Medicines Coalition (ATM). Membership comprises a large number of non-government health organisations advocating for increased access to medicines in New Zealand. The ATM believes the government of New Zealand has a responsibility to all New Zealanders to operate a pharmaceutical funding system with health outcomes as the primary priority.
To learn more, visit: www.atmcoalition.org.nz
New Zealand Bone Marrow Donor Registry (NZBMDR)
The Leukaemia & Blood Foundation operates and administers the New Zealand Bone Marrow Donor Registry. We are greatly assisted in this role by our close relationship with the New Zealand Blood Service.
The registry lists more than 7,800 people who are willing to donate their bone marrow (or stem cells) to patients world-wide. The NZBMDR is also part of a worldwide network of volunteer registries, which contains over 11.5 million unrelated donors. To read more about the NZBMDR, click here.
The Leukaemia Foundation (Australia)
The Leukaemia Foundation is the only Australian not-for-profit organisation dedicated to the care and cure of patients and families living with leukaemias, lymphomas, myeloma and related blood disorders.
They have offices in every state and territory across the country and their patient support extends across metropolitan, regional and rural communities, reaching more than 50% of newly diagnosed patients.
The Leukaemia & Blood Foundation works closely with its Australian counterpart to further our shared aims - a vision to cure and a mission to care.
To learn more, visit: www.leukaemia.com.au
New Zealand Blood Service (NZBS)
The Leukaemia & Blood Foundation works closely with the New Zealand Blood Service - a not for profit organisation responsible for the collection, processing, storage and distribution of all blood and blood products in New Zealand.
• 80% of us will need blood or a blood product during our lifetime
• currently about 4% of New Zealanders give blood
• NZBS needs more than 3,100 whole blood and over 500 plasma donations every week
• Every donation can save up to three lives
• NZBS needs to recruit more than 25,000 new donors each year to combat natural attrition
For more information or to find out whether you are eligible to be a donor, please call 0800 448 325 (0800 GIVEBLOOD).
To learn more, visit: www.nzblood.co.nz
March 2008
World Lymphoma Awareness Day (WLAD), held on September 15 each year, aims to raise awareness of a disease that is currently on the rise.
The day provides a focus for patient support groups, doctors, nurses, patients, and their families, to join forces in a united campaign to inform the public about lymphoma, its symptoms, and how it affects lives.