Patient stories

“We can’t go to playgrounds where Tommy can play with other kids. We’ve got to keep driving until we see a playground with nobody on it – it’s sad.”

“She sat me down and said, ‘If you don’t have a transplant, you’re not going to make it through the year.’”

"It’s hard to look back on that day. It’s almost like a story that I tell myself."

“I didn’t know what she wanted to talk about. And then she gave me eight weeks to live.”

“I’ve got amazing friends and family – they’ve all been there when I’ve needed them… And sometimes just being there is the best thing they can do.”

“They said, ‘If you go home, Vonda, you’ll be dead in 72 hours.’”

“Then we were at the point we’re at now, which was staring down our final treatment option – the second transplant.”

"I said to the doctor, ‘I can tolerate pain. But I can’t tolerate this.’”

“Eventually, a doctor came in and said, ‘You haven’t been told, have you?’"

“The support LBC gives to people is incredible… It helps people who are going through the journey to not feel so alone.”

“That was when it started to take off, full steam ahead.”

“I said, Alex – Do you think about dying?’, and he said, “Sometimes I do, when I’m dreaming. But, I want to live.”

"He was OK for a couple of years before it started to rear its head again. That's when they offered him the first clinical trial."

“All I want to do is be a dad. But I’m in here for four or five weeks at a time.”