Patient stories

“Max didn’t understand why Daddy was gone for a week every couple of weeks.”

“I just burst into tears, and I said, ‘Really? This isn’t going to kill me?’ And she said, ‘Not if you don’t let it.’”

"My body weight plummeted until I was little more than a bag of skin and bones.”

"I was so relieved because I knew once they found something, we could work with it."

"Dance saved me – it’s in my blood."

"I said to the doctor, ‘I can tolerate pain. But I can’t tolerate this.’”

“Eventually, a doctor came in and said, ‘You haven’t been told, have you?’"

“The support LBC gives to people is incredible… It helps people who are going through the journey to not feel so alone.”

“I said to the haematologist, ‘OK, can we start this afternoon?’ and she smiled and said, ‘Er, no, not this afternoon but we won’t be slow about this.’"

"We had a fair idea of what it could be... we were just hoping it wasn't."

“Someone said to me, ‘It’s amazing that you haven’t had a break down yet.’”

“She took me into the room and she sat me down with a haematologist. And they said, ‘Yep. You’ve got cancer. It’s a blood cancer.’”

“See, it’s funny with blood cancer…you always find an explanation for your symptoms. You never think it’s blood cancer, you think it’s something else.” 

“Sometimes even now, I think in the shower – ‘Today, am I going to find a bump that shouldn’t be there?'"