Useful links
There are many websites offering information on leukaemia and related blood conditions, and some have extensive information on the medical facts about bone marrow-related conditions. This section contains links to some of those websites.
The list is by no means exhaustive and the Leukaemia & Blood Foundation is in no way responsible or liable for the content or suitability of any of these sites.
If you have a specific query on leukaemia or related blood conditions which this site has been unable to answer, please email us at lbf@leukaemia.org.nz and we will endeavour to reply as soon as possible.
Leukaemia, lymphoma and general cancer websites
Leukaemia Foundation of Australia (Aus)
www.leukaemia.org.au
Cancer Society of New Zealand (NZ)
www.cancernz.org.nz
Cancer Control Council (NZ)
www.cancercontrolcouncil.govt.nz
Cancer Backup (UK)
www.cancerbackup.org.uk
Leukaemia Research Fund (UK)
www.leukaemia-research.org.uk
Cancer Research UK (UK)
www.cancerhelp.org.uk
Leukemia and Lymphoma Society (USA)
www.leukemia.org
American Cancer Society (USA)
www.cancer.org
National Cancer Institute (USA)
www.cancer.gov
Lymphoma Coalition (worldwide)
www.lymphomacoalition.org
Lymphoma Research Foundation (USA)
www.lymphoma.org
Lymphoma Association UK (UK)
www.lymphoma.org.uk
Lymphoma Information Network (USA)
www.lymphomainfo.net
Access to Medicines (NZ)
www.atmcoalition.org.nz
Australian Clinical Trials Registry (Aus)
www.actr.org.au
Myeloma sites
International Myeloma Foundation (UK)
www.myeloma.org.uk
International Myeloma Foundation (USA)
www.myeloma.org
Multiple Myeloma Research Fund (USA)
www.multiplemyeloma.org
Myeloma Foundation Australia (Aust)
www.myeloma.org.au
Myeloma TV (UK)
www.myelomatv.org.uk
Myelodysplastic syndromes and aplastic anaemia sites
Aplastic Anaemia and Myelodysplastic Syndromes International Foundation (USA)
www.aamds.org
Trust set up through St Georges Hospital - leading centre for aplastic anaemia care (UK)
www.theaat.org.uk
The Myelodysplastic Syndromes Foundation (USA)
www.mds-foundation.org
Thalassaemia sites
Cooley's Anemia Foundation (USA)
www.thalassemia.org
Thalassaemia International Federation (Cyprus)
www.thalassaemia.org.cy/introduction.asp
Sites for less common conditions
New Zealand Haemochromatosis Support and Awareness Group (NZ)
www.ironz.org.nz
International Waldenstrom's Macroglobulinaemia Foundation (USA)
www.iwmf.com
Amyloidosis Support Network (USA)
www.amyloidosis.org
Amyloidosis Australia (Aus)
www.amyloidosisaustralia.org
Myeloproliferative Disorders Foundation - covers Essential Thrombocythemia, Polycythemia Rubra Vera and Myelofibrosis (USA)
www.mpdfoundation.org
Bone marrow and blood stem cell transplantation (BMT) sites
The National BMT Link (USA)
www.nbmtlink.org
National Marrow Donor Program (USA)
www.marrow.org
Blood and Marrow Transplant Information Network (USA)
www.bmtinfonet.org
Good overviews of BMT can be found at the following sites:
www.cancerbackup.org.uk
www.lrf.org.uk
March 2008
Access to Medicines
The Leukaemia & Blood Foundation belongs to the Access To Medicines Coalition (ATM). Membership comprises a large number of non-government health organisations advocating for increased access to medicines in New Zealand. The ATM believes the government of New Zealand has a responsibility to all New Zealanders to operate a pharmaceutical funding system with health outcomes as the primary priority.
The Leukaemia & Blood Foundation operates and administers the New Zealand Bone Marrow Donor Registry. We are greatly assisted in this role by our close relationship with the New Zealand Blood Service.
The registry lists more than 7,800 people who are willing to donate their bone marrow (or stem cells) to patients world-wide. The NZBMDR is also part of a worldwide network of volunteer registries, which contains over 11.5 million unrelated donors.
