Useful links

The value of the internet is widely recognised. However, not all the information available may be accurate and up to date. For this reason, we have selected some of the key sites that you may find useful.

With the exception of our own websites, Leukaemia & Blood Cancer New Zealand does not maintain these listed sites. We have suggested sites we believe may offer credible and responsible information. Please be aware that we cannot guarantee the information on them is correct, up to date or is evidence based medical information.

Blood cancer information

www.leukaemia.org.au
Leukaemia Foundation – Australia

www.bloodcancer.org.uk
Blood Cancer – UK

Lymphoma

www.lymphoma-action.org.uk
Lymphoma Action – UK

www.lymphoma.org.au
Lymphoma Australia

www.lymphoma.org
Lymphoma Research Foundation – USA

www.iwmf.com
International Waldenstrom’s Macroglobulinaemia Foundation – USA

Myeloma

www.multiplemyeloma.org.nz
Multiple Myeloma NZ

www.myeloma.org.uk
Myeloma UK

www.myeloma.org.au
Myeloma Australia

www.myeloma.org
International Myeloma Foundation

Chronic lymphocytic leukaemia (CLL)

www.clladvocates.nz
CLL Advocates New Zealand (CLLANZ)

Myelodysplastic syndromes (MDS) & Aplastic anaemia (AA)

www.theaat.org.uk
The Aplastic Anaemia Trust – UK

www.aamds.org
Aplastic Anaemia & MDS International Foundation – USA

Myeloproliferative neoplasms (MPN)

www.mpnresearchfoundation.org
MPN Research Foundation – USA

www.rarediseases.org
National Organisation for Rare Disorders (NORD)

Other blood disorders

www.amyloidosis.org
Amyloidosis Foundation – USA

www.pdsa.org
Platelet disorder support association – USA

www.thalassemia.org
Cooley’s Anaemia Foundation – USA

www.ha.org.au
Haemochromatosis Australia

www.haemophilia.org.nz
Haemophilia Foundation of New Zealand

Stem cell and bone marrow transplant

www.bethematch.org
Be the match – USA

www.bonemarrow.org.nz
New Zealand Bone Marrow Donor Registry

Information and support for adolescent and young adults (AYA)

www.canteen.org.nz
CanTeen – NZ

www.canteen.org.au
CanTeen – Australia

www.riprap.org.uk
Riprap – UK

Support for children

www.childcancer.org.nz
Child cancer foundation – NZ

General cancer information and support

www.cancernz.org.nz
Cancer Society – NZ

www.cancer.org.au
Cancer Council – Australia

www.macmillan.org.uk
MacMillan Cancer Support – UK

www.cancer.org
American Cancer Society

Emotional and social support

www.cancer.net/coping-and-emotions
American Society of Clinical Oncology (ASCO)

www.clicsargent.org.uk
CLIC Sargent – UK